Literatur – 11. Richtige Forschung geht uns alle an
1. Oliver S, Clarke-Jones L, Rees R, et al. Involving consumers in research and development agenda setting for the NHS: developing an evidence-based approach. Health Technology Assessment Report 2004; 8(15).
2. NIHR Guy’s and St. Thomas’ and King’s College London’s Biomedical Research Centre. Involving users in the research process: a «how to» guide for researchers. Version 1, April 2010. Zugänglich unter: www.biomedicalresearchcentre.org.
3. Cartwright J, Crowe S. Patient and public involvement toolkit. London: Wiley-Blackwell and BMJI Books, 2011.
4. European Science Foundation/EMRC. Implementation of medical research in clinical practice – a growing challenge. Strasbourg: ESF, 2011.
5. Hanley B, Truesdale A, King A, et al. Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey. BMJ 2001; 322: 519–523.
6. Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002; 325: 415–417.
7. Staley K. Exploring impact: public involvement in NHS, public health and social care research. Eastleigh: INVOLVE, 2009. Zugänglich unter: www.invo.org.uk.
8. Petit-Zeman S, Firkins L, Scadding JW. The James Lind Alliance: tackling research mismatches. Lancet 2010; 376: 667–669.
9. Patient Partner Project. An EU programme «Identifying the needs for patients partnering in clinical research»: www.patientpartner-europe.eu.
10. Thornton H, Edwards A, Elwyn G. Evolving the multiple roles of «patients» in health-care research: reflections after involvement in a trial of shared decision-making. Health Expectations 2003; 6: 189–197.
11. Dixon-Woods M, Agarwal S, Young B et al. Integrative approaches to qualitative and quantitative evidence. NHS Health Development Agency, 2004.
12. Kushner R. Breast cancer: a personal history and an investigative report. New York: Harcourt Brace Jovanovitch, 1975.
13. Lerner BH. The breast cancer wars: hope, fear, and the pursuit of a cure in twentieth-century America. New York: Oxford University Press, 2003.
14. Institute of Medical Ethics Working Party on the ethical implications of AIDS: AIDS, ethics, and clinical trials. BMJ 1992; 305: 699–701.
15. Thornton H. The patient’s role in research. [Vortrag, gehalten anlässlich der The Lancet «Challenge of Breast Cancer» Conference, Brügge, April 1994.] In: Health Committee Third Report. Breast cancer services. Volume II. Minutes of evidence and appendices. London: HMSO, July 1995, S. 112–114.
16. Concorde Coordinating Committee. Concorde: MRC/ANRS randomised double-blind controlled trial of immediate and deferred zidovudine in symptom-free HIV infection. Lancet 1994; 343: 871–881.
17. Perehudoff K, Alves TL. Patient and consumer organisations at the European Medicines Agency: financial disclosure and transparency. Amsterdam: Health Action International, 2010. Zugänglich unter: www.haieurope.org.
18. Herxheimer A. Relationships between the pharmaceutical industry and patients’ organisations. BMJ 2003; 326: 1208–1210.
19. Consumers’ Association. Who’s injecting the cash? Which? 2003, April, S. 24–25.
20. Koops L, Lindley RI. Thrombolysis for acute ischaemic stroke: consumer involvement in design of new randomised controlled trial. BMJ 2002; 325: 415–417.
21. Donovan J, Mills N, Smith M, et al for the ProtecT Study Group. Quality improvement report: improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. BMJ 2002; 325: 766–770.